|Tuesday in the Park|
My sleep is a little out of whack, what with staying up 'till midnight on Tuesday to watch Merchant rehearsal. I don't regret a second of it, but it has thrown my routine off a little.
I've been trying to remember what exactly keeps me awake when I'm lying there in the night. Tonight it was hiccups. I start getting these hiccups that lead to nasty heartburn, really uncomfortable. It isn't something I can take a pain pill for because it isn't a chronic thing. It only happens when my stomach spasms which only happens when I move, or breathe, or sip water, or swallow. Antacids don't help because it isn't really acid reflux, I don't think. It's just more like belly trying to turn itself inside out. Hard to describe. Not nausea, not really. But very uncomfortable and not something you can just go back to sleep through.
Another thing is this nasty taste. Not really a taste in my mouth. It's actually the taste of my mouth. The doc explained that the white coating all over my tongue isn't thrush any more (great news, by the way) but it is dried saliva. It's like when you exercise out doors and your mouth starts to dry out and get sticky inside. There isn't enough water in my mouth to thin the mucus, so it just sort of coats everything in this slippery film. That's good and bad. Good because it protects all those tissues that might otherwise dry out. Bad because it tastes just really bad. This is all credited to the radiation, the only really consistent side effect that bothers me now that the magic swish 'n' swizzel is doing it's numbing thing on my throat.
I finally got up and fed myself today. That's kind of a pathetic milestone, I guess, but it felt like quite an accomplishment at the time. Here's how I eat breakfast. First I get a large clear carafe looking thing that we got from the doc and fill it with two cans of Ensure. Then I get half a glass of clear water and a 60 mm syringe. That's a big one with a plastic tip, no needles for me, thanks. Now I take the whole kit to the bedroom because I have to be lying at about a 30 degree angle. Too flat and the food washes up in to my esophagus and maybe even my lungs. Too steep and back-pressure builds up in the tube and stuff gushes back out. Yuch, on both counts.
|Percutaneous Endoscopic Gastrostomy|
When I'm done, I rinse a couple of syringe-fulls of clear water through the tube to keep it clean. I'm pretty conscientious about this, what with it being a little hose running directly into my innerds and all. I've put enough weird stuff into my stomach in the usual way over the years. No use letting anything sneak in through the side door.
I don't do the pills on my own. Not when we've got all the chemo/nausea/steroid/phych meds going at once. Mrs P and Mum's trusty chart keep me on track with that. Besides, there are a couple of liquids that need to be mixed and my hands are too shaky for compounding concoctions with little cups and spoons. So, the morning ablutions are now complete, just a little clean up left to do, then it's off to the clinic for some more radiation and a new day. Hope yours is good. Mine will be...