Showing posts with label patience. Show all posts
Showing posts with label patience. Show all posts

Wednesday, May 18, 2011

#330: The Waiting Begins



"What are we doing?"
"We' are waiting for the Doc."
I've said it a hundred times: cancer teaches you patience. I went to the clinic at 1:00 and was there until 3:30. During that time, I went to the wrong registration desk, scooted across the campus to the PET scan trailer, sat for half an hour while my bed turned radioactive, went back across the campus to the first place, registered for my CT scan, sat for about 45 minutes until they realized they had lost my paperwork, got some news from the radiologist, and rode the little sled through the CT scan. And thanks to the things I've learned about life in the last year, I was pretty cool with the whole thing..

Mrs P was really anxious about my scans this morning. I used to think that these morning episodes were because she was a little bit psychic. Now I think it's because her blood sugar is a little bit low in the morning. We talked a little bit, let the dogs out, and started our day.

My appointment was 1:00. For some reason, I had written 2:00 on my calender. Luckily, I got a reminder call yesterday. Still, the confusion left me in a sort of non-committal state. I was showered and ready to go by noon, but then I sat down to spend just a little more time on Facebook. So I hit the clinic door right at 1:00. As I stood in line to check in, my phone rang. It was the PET lab calling to find out where the devil I was. PET time is expensive time. I told her I was in line at the registration desk. She told me I was in the wrong place, and to ask for directions. Now, I had been to the PET scan gizmo once before, but I was busy wondering if I had cancer or not, so I was a little distracted. Today, the nice lady at the front desk gave me directions and I trundled off through the rain to the right place.

Checking in was fast and easy. We all laughed at my mistake. I wasn't embarrassed, and didn't feel obliged to make an excuse or even to fake contrition. I just laughed, and they laughed with me. Then a nice lady named Wendy walked me out to the trailer and we road the lift-gate up to the waiting area. A man who was introduced to me as "Mr. P" without irony or further information injected the radioactive stuff into me. He apologized profusely when he pulled the IV needle out of my arm just as Wendy reminded him that I needed to keep it in for my CT scan later. I shined it on, no problem. Seems like Mr. P has dealt with less patient patients than I.

After half an hour of sitting verrrry still so as not to stimulate what Mr. P called "muscle uptake," Wendy asked if I was ready to go to the bathroom. I told her, no, that it hadn't occurred to me. She seemed puzzled, then said that I really had to go to the bathroom. I figured, "She's the professional, who am I to argue?" Of course, soon as I stood up, the little room started spinning. See, when you get a PET scan, you have to fast for 6 hours. I hadn't eaten since the night before, and it was now almost 2:00. Add low blood sugar to my ongoing issues with blood pressure and it was not a very promising combination. I grabbed onto the door jamb until I could gather myself, then Wendy took my arm and escorted me to the bathroom. I explained that my pressure was a little weird, and she explained that I needed to empty my bladder before the scan. I kept wanting to pull my arm away from her and tell her it was OK, I could walk fine now, but she was kind of a cutie pie and I could tell she was worried about what would happen if this giant old man tipped over on top of her in the parking lot. At least she let me pee alone.

Back at the PET scan trailer, things went pretty much as I remembered. I had to take off my RoadID dog tag and my glasses. I also had to shuck my running pants down around my knees so the metal zipper pull s on the pockets wouldn't show up on the scan. I assumed the position, face up, knees elevated, arms up over my head, and promptly went to sleep for the 20 minutes or so that the scanner rolled me back and forth through a long, white, humming tube. A third tech who never introduced herself helped me to get off the table and waited patiently while my head found its balance, then she sent me on my way back to the front desk to register for my CT scan.

I sat in the waiting room in radiology for a long time. I had arrived with my little note from the registration lady, and filled out the paperwork for the radiology lady. Then I sat down and tried to find a wi-fi connection for my iPad. No luck. I read a Time magazine. I read another Time magazine. I was well into a copy of ESPN the Magazine when I heard a different radiology lady on the phone saying, "No. Not here... Well, I'll call the name and see if anyone answers... Mr. Pennsy?"

"Yeah. Right here."

"Oh, my. How long have you been there?"

"Not sure. Not too long I guess."

"Did you fill out your paperwork?"

I pointed out the clipboard where all my check marks and signatures were still on her desk.

"Oh, my.... Yes. He's here... Well I don't know... Debbie must have forgotten to send it back." She hung up and looked at me nervously, as if I might yell or sue her or slash her tires. "I am so sorry. They'll be right out."

I couldn't resist. "You sure threw old Debbie under the bus in a hurry, didn't you?"

Different radiology lady turned from sorry to sharp. "Sure did. She'd do it to me in a second."

The more time you spend around medical professionals, the more you realize why so many soap operas are written about them.

A lady with a clipboard came out into the lobby, apologizing profusely. You'd have thought these people had lost my car. The people who once sent my luggage to Los Angles by mistake were never so sorry. Clipboard lady told me that the radiologist had seen my scans and wanted to make a little change. Dr. Colin had asked for a scan without contrast, but the radiologist wanted me to have it. I told her I was fine with that. She said she had to call Dr. Colin to get his permission, and slipped off with her clipboard.

And for the first time all day, they had my attention. CT with contrast. We hadn't done that for a long time. To be honest, I don't really know what that means. They inject a iodine dye into your blood and it helps things to show up better, I guess. What things? What did the doctor see? Why had this taken so long? Were the Republicans behind this? The Illuminati? Muslim extremists? By the time CatScanMan came out and called my name, I was full of questions and theories. He was also very apologetic. I was getting a little tired of having my butt kissed. Just stick the needle in and scan me already. CatScanMan was very nice. He reminded me of a very large elf. He waited with me in the hall until it stopped spinning so I could walk on with him. He was not a cutie pie, and did not offer to hold my arm. I was cool with that.

I took off my glasses and ID tag one more time and plopped down on the table by my old friend, the CT scan. CatScanMan found a vein and stuck me, then I felt the weird warmth of the contrast fluid flowing in. The radioactive PET scan stuff is cool at first, then there's no sensation at all. The CT scan contrast stuff is warm and you can feel it as it travels all through you. I guess it affects everybody differently, but it always seems to settle in my crotch. My butt crack gets hot and I feel like I have to pee. Oh the wonders of modern medical science.

We made small talk as he set up the machine. This banter has been a part of my routine throughout the past year.

"I sure am enjoying this more than the last time I was in here?"

"Why is that?"

""Cause they found cancer the last time."

"Really? What kind?" Part of me wondered why he didn't know that already, and part of me wondered if it was important.

"Head and Neck. Squamous cell. In my tonsil and neck."

"Squamous. OK." He was much too interested. I wanted more small talk. I wanted him to apologize again. He positioned my head and left the room.

"Hey, I'm wearing dentures. Does that matter?" No answer. The sled rolled in and out of the donut scanner a couple of times.

He came back to my side. "What kind of cancer did you say you had?"

"Squamous cell carcinoma. Do I need to take out my dentures?"

"No. No. That's fine."

Dude? What's with the furrowed brow in your voice? It's just a little cancer. Nothing to worry about. The docs took care of it. Now take your pictures, and prove me right.

As the sled rode back and forth, I realized that I was now in a state of growing paranoia. This was supposed to be a celebration day, a victory lap, a ticker-tape parade. I mean, you can look at me and see I don't have cancer. Why are these people making such a big deal of what is really just a formality?

When the test was finished, I was wide awake. CatScanMan pulled off the tape (always the worst part,) slipped out the needle, and taped a big wad of cotton over the hole. Then he said the worst possible thing he could have said under the circumstances.

"Well. Best of luck to you." He sounded like an undertaker.

Best of luck? Best of luck? Are you out of your mind? I searched his face to try to see if he had spotted anything on the screen. After all, it was a CT tech who first saw my saddle embolism. These guys know what they are looking at. He gave me back a poker face, not at all the jolly, contrite health care elf he had been before the scan. By the time I left the building, I had just about convinced myself that I was going to die. Mr. Mellow had transformed into Mr. Anxiety at the drop of an IV needle.

OK. Deep Breath. None of these things means anything. These are just things that happened on my way through someone else's melodrama. My brain knows that I have to wait a week for the results, so my imagination is filling in the empty space with a little drama of my own. I'm fine. I know I'm fine. I run 10 miles a week. I'm doing a 5K this weekend. I do plays. I love my wife. I play with the dogs. I'm fine.

And just a little worried. Next Wednesday can't some soon enough. Good thing cancer taught me all this patience. I'm gonna need it.

Peace,

Pennsy

Thursday, June 3, 2010

#172: The End of the Beginning

I can see the mouth of the tunnel from here. We went to the doc to day to check on the PEG tube. It's been a rough week since it was placed. I developed an infection around the site where it pops out of my belly. We wound up on the ER on Saturday morning of Memorial day weekend. They gave me some antibiotics and sent me home. Today the surgeon gave me a clean bill. The infection has cleared up, the tube looks good, and we are all clear to start chemo and radiation on Monday. At last.

It's funny. I'm looking forward to starting what promises to be the worst part of my treatment. I'm not sure though. The waiting has been pretty bad. Anticipating something awful can be worst than the thing itself. Like waiting in the office to see the elementary school principal.

There were horror stories about Miss Grove and the instruments of torture she kept in her small chamber. The most dreaded was the "Electric Paddle." It was said that only the worst of the worst miscreants of our school had ever even seen, let alone felt it. I'm not sure I ever even heard anyone explain what it was. Only that it was the most cruel, painful punishment imaginable. I made a trip or two into that office. I was whacked with a ruler once or twice, and I have a vague recollection of a confiscated paddle-ball paddle, but I never did see the evil machine hidden in her closet.

That's what this feels like, this waiting for treatment to start. All the preliminaries are complete. Tumor cut out. Teeth gone. Tube installed. They have prepared me for the worst, and my imagination has filled in the rest. I have no idea what awaits me in those dark little rooms full of needles and isotopes and whirring machines. I only know that I am exhausted with dreading them. I'm ready to go.

The beginning of my Cancer treatment is over. Time to turn toward the tunnel.

Friday, May 23, 2008

Keep a-goin'

It's been a strange week of highs and lows. I started out still glowing from finishing the 5K, even as my left leg became weaker and more painful. When a bruise started to form on the back of my calf, it became clear that this was more than just a charley horse.

I consulted "Dr. Google" and checked off my symptoms.
  1. Sudden, painful onset
  2. Loss of strength
  3. Painful to the touch
  4. Visible bruising
Yup, I strained my calf. Not badly - but you know- badly enough. I had planned to take Monday and Tuesday off from the gym anyway. As it turned out, I couldn't have gotten from the car to the locker room without help. By Wednesday I was feeling some improvement, so I decided to take one more day of rest. I stayed home from work, walked around with Molly a little, and kept the leg wrapped and elevated.

By Thursday I was jonesing so bad for exercise that my skin was crawling. I was irritable at work, losing my temper at one point and slamming both fists on my desk - very melodramatic. I had had enough of frustration. At quitting time I drove right to Promatx. I did a little time on the bike and a little on the elliptical, but cardio was not what I was aching for. (and to be honest, they both hurt my leg a little.) I hit the weights and worked my legs and lower back as hard as I could stand. I was cautious of the injury, but rather than compensating with other muscles, I concentrated on maintaining good form and taking my time.

When I had finished my workout, I was a little lost. I had done all I intended to do, but I really wasn't ready to leave. I stood by the water fountain and looked out over the machines and the faces and the mirrors. I was so damn glad to be back. After a quick sauna, I checked the scale to see how much damage I had done on that front. As I suspected, I had gained two pounds which the meter confirmed was mostly fat. I don't think missing a couple of workouts did that, but filling the idle time with food did. To be honest, I was glad it wasn't worse.

I've been stuck at this weight and body fat % for weeks now. I keep fiddling around, changing this meal, increasing the intensity of that exercise. I'm going to dig out the blender and start making smoothies this weekend. Maybe that will help me to balance my diet a little better. Now it looks like it's going to be at least another week before I can run again. My plan is to spend that time building lean muscle mass in the weight room and learning about food without eating so much of it. I still want to do the July 4 10K here in Lexington, but it's looking more and more like a walk/run than a run/walk right now.

Tonight I had another great workout. I used the resistance bands to warm up for about fifteen minutes, then hit the weight room. Chest and upper back. I love when I finish an exercise and I can feel the muscles across my chest or between my shoulder blades. It's like something coming to life in there.

Slow and Steady. I've decided to take Aesop's Tortoise as my totem. He'll be up there in the corner of the page for a while. I know I'm not a hare. No amount of work will make me one. But patience, determination, and a tough hide will get me where I'm going just the same.

Author: by Frank L. Stanton (1857-1927)
If you strike a thorn or rose,
Keep a-goin'!
If it hails or if it snows,
Keep a-goin'!
'Taint no use to sit an' whine
When the fish ain't on your line;
Bait your hook an' keep a-tryin'--
Keep a-goin'!

When the weather kills your crop,
Keep a-goin'!
Though 'tis work to reach the top,
Keep a-goin'!
S'pose you're out o' ev'ry dime,
Gittin' broke ain't any crime;
Tell the world you're feelin' prime--
Keep a-goin'!

When it looks like all is up,
Keep a-goin'!
Drain the sweetness from the cup,
Keep a-goin'!
See the wild birds on the wing,
Hear the bells that sweetly ring,
When you feel like singin', sing--
Keep a-goin'!
I have no idea why I remembered this poem just now. Reading it again, I am struck by that last stanza. "Drain the sweetness from the cup," That's good stuff. That's American stuff.

Kind of makes a Fat Man feel like singing.

Peace,
Pennsy

Monday, March 31, 2008

An Inspiring Fat Man

I saw this video on Runner's World. It really touched me.

It's great to know you aren't alone. I love the part where he says he's 258, but would like to be around 200, tomorrow if possible.

Like the guy with the hair says -- the key is consistency/not immediate results.

I did a hard half hour on the elliptical today - kept my heart rate in the 160's (my max HR is 172) - then showered and joined Mrs P and our family for some Thai cooking. Garlic asparagus with tofu. Awesome. It tasted like spring.

Tomorrow, back to the weights. The short workout was easier on my knee, even if it was more intense. It felt good to soak in honest sweat again.

Peace,
Pennsy

Friday, March 28, 2008

Running in the Dark

Fat and depression have been my companions all my life. I am determined to part ways with both of them, but they are stubborn bedfellows.

I’m bummed this morning. But I’ll be damned if I’m going to give up this time.

I’m not sure I would call last night a work out. I was scheduled for a cardio day, but couldn't really get it going on any of the machines. I started on the recumbent bike, but after about 10 minutes the knee felt a little weird, so I decided to try something else.

I’ve never tried the stair climber before. It seemed like an exercise with very little pounding, so I checked it out. I made it about 2 minutes. Not because my knee hurt, but because it is one mother of a workout for a fat man. I decided to try something else.

The treadmill was a washout. I did about 15 minutes at 3mph. My heart rate never got above 108. I guess that’s a good thing. That’s what my heart rate was the first time I stepped on the treadmill after walking to it from the locker room. Still, it felt more like a good sweat than a good walk.

The elliptical was my last choice and turned out to be my best effort. I did 10 minutes and finally got my heart up to 131 bpm. Then I bailed.

I had intended to take a yoga class last night, but my “warm up” had taken all the wind out of my sails. The depression that exercise has been battling down rose up and grabbed the back of my shirt. I changed my shoes and came home.

The knee isn’t painful, not really. I don’t limp or anything, but the threat of injury has triggered a real fear that I will get hurt and give up. Irrational? Sure, but depression isn’t a rational disease. I’m not at the stay in bed with the covers over my head stage - haven’t been there for years - but I am in a pretty dark place right not. The place where Mrs P asks “Are you mad at me?”

When I left the gym last night, I decided to take today off. That decision was what put my emotional state over the edge, I think. I may go in and do a light weight workout, just to keep the wolves in my head away from the door of my heart.

Peace,
Pennsy

Post Script: right after I finished this post, I went to my Google Reader to look for a reason to lighten up.
It's not true that life is one damn thing after another; it is one damn thing over and over. - Edna St Vincent Milay
Sometimes just knowing that you're not alone is comfort enough.
pax
p


Thursday, February 28, 2008

Good Things Come to Those Who Weigh

381!

Did you ever hear anyone brag, “Hey, check me out. I’m down to 381 lbs!"?

Well get a load of me, baby.

A part of me is tempted to say, “Yeah, well you should never have gotten so fat in the first place.”

And to that little poisoned voice, all I can say is--

Get a load of me, baby. 381. (insert happy butt wiggling dance here)

What’s that you say? Can I keep it off?

Don’t care. Tonight I don’t care a lick.

I have lost 24 lbs in just under five weeks. I did it by saying my prayers, asking for help when I needed it, working hard and eating clean.

Do I still have a long way to go? Oh yeah, you know it. But don’t you just love passing that first mile marker on a long trip? Tonight, mine said - “176 lbs to home.”

And right now, 176 feels an awful lot less than 200 did.

Have a beer for me, my skinny young friends. I’m feasting on Crystal light and chicken salad.

And I’m a tenth of the way home.

Peace,
Pennsy

Sunday, February 3, 2008

Four miles and a weigh in.

This was a long walk day. Four miles on the treadmill. My heart rate reached 155 and stayed there. The feet felt great. New socks may have been the best investment I’ve made since I started. No more tube socks for me.

I was a little disappointed by my weigh-in. 390 lbs. Only lost three pounds since last week.

Funny, but my first thought is always to doubt the scale. That’s one I definitely need to get over. Missing a workout with a cold this week didn’t help. I also could have eater better. I may have to start logging meals too, but I really don’t care to bore myself or anyone else with diet minutiae.

The small change in my weight was discouraging (especially after a four mile walk). Then I thought, "This is just an obstacle." It’s resistance. I want to run five miles, but for now, I walk four. I want to lose 200 lbs., but for now, I’m down 15. I'll work through out the same way I worked up to 4.5 mph on the treadmill -- one step at a time.

I am working hard to get where I’m going. I won’t get there in a hurry, but I’ll by-God get there.

Label Cloud

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