A new week full of possibilities. It has been a long time since I had the courage or the inclination to look ahead more than a few hours. Suddenly I have actual plans and anticipations! Feels like part of me is coming back to life.
We should learn this week if I've been approved for COBRA coverage from work. That will aid the great drug scramble. I hope to learn if our request to waive the pre-existing status on my cancer is approved. That will free up some money to cover part of my chemo. I continue hoping for the kindness of the strangers at Blue Cross. We're also talking with the folks at Medicaid to see if they can offer any help.
Blood work today will well us how well the anticoagulant drugs are working. If I'm progressing on schedule, I'll be able to eliminate some shots and maybe even get rid of this oxygen tube in my nose. I thought I was all finished wih shots, but they put me back on the Arixtra last week.
I've started trying to eat by mouth. I have to be off the feeding tube for a couple of weeks before they will remove it. That part is hard. I can't stand the taste of anything. Applesauce, oatmeal, even chicken broth all taste more like solvent than food. I try a little each day, but it is discouraging so far.
One thing that is not discouraging is the continued kindness and generosity of friends and family. I would have thought that by now people would have been bored with me and my stories, but they continue to call, write, and visit. It means so much.
Met with a director on Saturday who wants me to be in a staged reading of a musical. It depends on when I get my teeth. Meantime, I have started working full steam ahead as if I were preparing the role for performance. It is such a great feeling to be busy doing work that I love. I just don't know when I'll have the wind again to be able to play. One thing I learned from reading Lance Armstrong's story was to never give up on a comeback. It maybe a while, there may be false starts, but I am determined to play again.
The best news is that for the first time in months, I have something to think about besides cancer. That in itself opens a world of possibilities I am eager to explore.
The Long Road... #2014reboot
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